Wednesday, March 23, 2016
New TPN and medications have just been delivered!!!! Lot's of changes but I'm ready. Hyperparathyroid disease will not whip me!!!!!!
Well, Home Infusion Services just delivered my new regimen that is going to make me well!!!!! I have faith it will. I have faith that Dr.Vic is the answer to many, many prayers that have gone up for me for three years. Many of you have stuck with me all this time, praying for me, supporting me, loving me. That is priceless to me because so many of you I don't actually even know other than through Face Book but you have become such good friends to me. You guys have been here for me when even some family hasn't. I know many people have believed that I wasn't really that sick since nobody could find a definite diagnosis for my health issues. I suppose I can't blame anybody since the doctors pretty much told me the same thing. Now I just feel total relief that I was blessed to find a doctor that really understands and believes me and knows exactly all I'm going through but better yet he knows how to fix it. I will never be cured, it will be a part of my life until I die but it can be controlled once it is finally gotten under control. That will take time. I'm not a patient person, never have been. I wanted to find a doctor that would give me an instant cure. Well, that 's not to be but I do believe that today is the first day of beginning a treatment that will in time work it all out and I can live an active, happy life again for however long God give me on this earth. I have a lot of living to do and a lot of catching up. I never dreamed when this journey all began that I would still be sick, worse in fact and still not even have a clue what is wrong with me three years later. I really thought when I had the bile duct surgery that that was my problem and I would be completely well again but as you all know that have followed me, that was not to be. In fact it was a factor in not being able to even get some better since I have most likely had hyperparathyroidsim for many years, it had just taken time to get so bad I couldn't go on anymore. I got a new drug today, Calcitrol, that will be given by IV on a pole but it can go through my port. I will get that three times a week. Calcitrol is a drug used to treat or prevent low calcium levels and is used to treat poor parathyroid function, which is my problem. I got a whole new TPN feeding also. It contains much less calories than I was getting before but more phosphorus, more vitamin B complex, more protein from fat, all the things that someone on TPN for malabsorption/malnutrition problems needs. People on TPN for regular dietary problems do get a standard TPN feeding, which is what I have been on since January 4th thinking it was solving my problem. I don't fault my primary care doctor at all though because he was only doing what he knew to do. He was trying, that's something the specialist never tried to do before finding Dr. Vic. I'm not sure how long it will take before I begin to notice a big improvement on my energy/stamina, etc. how long before I begin to get back to life as I used to know it but it can't come soon enough. However, I didn't get this sick over night and I won't get well over night. I still hope and pray that I can help other's that have had gastric bypass avoid all the problems I have gone through. First of all, the blood work that we need as gastric bypass patients is totally differently than standard blood work for normal people. Things like vitamin D, magnesium, phosphorus, B complex vitamins have to be monitored closely. Those aren't standard blood work. If you are a gastric bypass patient, ask your doctor if those things are being routinely checked. If not, ask him to do it. Every time I would get blood work done and ask how it was I was always told "everything looks good" well, it didn't because the things I needed checked weren't being checked but I had no idea those things weren't routinely checked. My primary care doctor only has two gastric bypass patients so he had no idea either, but now he does. Your parathryoid, PTH, level needs to be watched. If it is high, then you have a big problem. If it's high and your calcium, vitamin D, and phosphorus is low, you've got a definite problem. Then the problem begins where to go to get help. Even most Endocrinologist don't even recognize parathyroid disease because they normally only see thyroid problems, not parathyroid. I know it's not going to be easy, believe me but in the end my experiences might help you get help sooner than I did. If I had not found Dr. Vic though I'd still be in the same boat. I can attest that all Gastroenterologist are not created equal!!!!! I should know, I've seen a total of six in three years. Not one of them before Dr. Vic had any idea of my problem. Sad isn't it? So, I will continue to let you all know what happens as I get into this new treatment. Even if it doesn't go the way I hope and pray it will, even though I 100% believe it will right now, I will also tell you guys that. It's only fair to tell the truth in the whole thing. I can't mislead you and hope to help you. Continued prayers that I respond to this and do it soon!!!! Yesterday would be good!!!!
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ReplyDeleteMY son fixed my problem and now I am testing. The test above was a guy from Google helping me.
ReplyDeleteYAY Jennifer I'm so glad you can post now. Please keep sharing my journey with anybody you think might need to read it. You are such a blessing to me. I'm so happy we found each other after all that time apart. I wish Linda were still around to see you and I have become close friends and that Rachel is so happy living with me & Hamp.
ReplyDeleteYAY Jennifer I'm so glad you can post now. Please keep sharing my journey with anybody you think might need to read it. You are such a blessing to me. I'm so happy we found each other after all that time apart. I wish Linda were still around to see you and I have become close friends and that Rachel is so happy living with me & Hamp.
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