Random pictures of me going through just part of what I've gone through during my illness with Secondary Hyperthroidism

Today I just wanted to share a little bit of my struggle to find out what is wrong with me by showing you all a few pictures of what life is like on a daily basis for me dealing with the SHPT (that is an acronym for Secondary Hyperparathyrodism and I will use it often rather than type it all out. I did just get some pretty good news about my phosphorus from my Home Infusion service that mixes up my TPN feedings each week, my phosphorus came up this week from 1.2 to 2.4 !!!! That is a miracle. It had been going up a little and then way back down. They have to get my phosphorus back up to normal, which is between 3-4 before my symptoms such as extreme pain, breathing problems, extreme fatigue, just generally feeling like you just can't go on will ever get better. I praise the Lord for this and every little step I take. I still haven't heard from the Endocrinologist so I'm still on pins and needles waiting for them to call and set me up with an appointment to find out how to treat my SHPT so I can finally get well and begin to live my life again. I just want to be normal, whatever normal is for a senior woman of my age, which is 67. I have a lot of living left to do. I have a wonderful husband who has stood by me through all this that deserves a wife he doesn't have to nurse all the time. I want to feel like getting out riding the Harley with my sweetie again. That is something we both just love to do and I have only ridden once in  almost two years and it was just a very short ride and it wore me out. The feeling of being behind him on that V-Rod with the wind in our faces and the world at our feet is so awesome and I miss that. I miss dancing with my husband, just enjoying all the things we used to do. After all, we are still  newly weds because we have only been married almost four years but I've been sick most of that time so I want to be the wife my husband thought he was getting. He's such a good man. He's a godly man who cherishes our marriage and we both just want to be able to go to church together and me not have to stay home. So, in my attempt to get the word out to anybody I can about this disease & the effect it can have on your body, your soul, your  mind, your family, just everything you do I will be nothing less than honest and show even the bad parts of this disease. I hope soon I can begin to show the healing part of this disease.

Me getting an iron infusion

This is how I feel all the time!

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In the hospital again, getting work on the Groshong port in my chest.

My 20 lb. bag of TPN I carry around for 16 hours a day!!!

The bag of TPN with the vitamins in a bag beside it that my husband has to add to the feeding before he hooks me up.

Just another procedure I had to have trying to get nutrition in to build me up

My bag of iron that I got once a week for four weeks. It ended up the iron caused my phosphorus to drop to .8, which is critically low so it's been a battle to get it back up.

I have no idea how much longer I will have this in my chest but it's going to be a good while. I had surgery on the Groshong port three times, The first one just didn't work right and he kept trying to get it to work but finally decided I would have to go back to surgery again to put a new port in. Thankfully this one is working fine.