Today is just another long day in my journey. I've continued to have the extreme lower back, hip & leg pain but no answers yet. I still am very sure it's the 'bone pain", another symptom of this disease, that continues to plague me daily. It isn't enough that I deal with the continuing chest pain and trouble breathing due to the low phosphorus I have, you guessed it!!!! another symptom of my disease. One ray of sunshine in this otherwise cloudy day, I got a call pretty early this morning from my PCP that I went to see last Thursday, who promised to get me an appointment with Dr. Bruce Trippe, and Endocrinologist in Montgomery, telling me that they did talk with Dr. Trippe's office and they are supposed to be calling me soon with an appointment to go to Montgomery and consult with him and hopefully he will know all about SHPT and how to treat it. At least I'm holding on to that hope for now. I will take anything right now. I saw my home health nurse this morning for a dressing change on my Groshong port and for her to draw my weekly blood and she is supposed to let me know how my phosphorus is this week because this past week it went way down again in spite of receiving 40 mg. in each bag of TPN I am getting each day. I believe if that was going to do any good I would already begin to see a big jump up in the phosphorus levels instead of it going back down. The phosphorus is very important because it is the thing that is causing so many of my problems right now, weakness, chronic fatigue, chest pain, trouble breathing, heart palpitations and just a general feeling of udder depression that I might never get any better. I want the medical world that control all this to do something about it now, don't make me wait and wait for yet another appointment with somebody that possibly can do something to help me. This disease is hard to live with because nobody understands it, even when you try to explain it to them, and if they see me doing things, which I am very rarely doing anything because I don't have the strength or energy to do anything, they think I must be okay. I'm not but I have a 17 year old foster daughter who really needs me right now so I push myself as much as my body will allow me to to get up out of bed sometimes and make an effort to do something with her. My husband, her uncle, has to do almost everything with her because I'm just not able. While I'm whining I will just throw this in. I bought VIP tickets for Rachel's birthday present to go and see Jeff Bates in concert March 12 in Brewton, Al. and when I bought the tickets I honestly believed and hoped I would be better. Well, I'm not and now I'm so worried about this concert. It's this Saturday and I lay here and wonder if I can actually hold out long enough to do this. My heart says yes, my head says no, lol. I learned one thing, I cannot will myself to do anything anymore. I used to be able to do it before I got this bad, the phosphorus problems, then my hips and legs are hurting me so much each step is so painful. I have to just creep along with my rollater walker but that is so cumbersome to take around. Taking it out of the trunk and getting it opened up is a chore. Rachel can do it but still I just hate that I have to go that way. I used to be a ball of energy, a barrel of fun, always the life of the party until this disease started controlling my life. I am praying about this because I do know that prayer and God are the only answers for me. I know the doctors can treat me when I find the right one but I also know Jesus is the great physician and He's been with me through all this from the beginning so I know he hasn't forgotten me. My faith isn't strong sometimes, I falter and then I'm ashamed of it. I guess there are other things out there that are much more important but right now, being with Rachel, being the mother to her that she needs me to be, have fun with her like we used to do when I wasn't so sick is just the most important thing in the world to me. I'm hoping tomorrow I will get that call to go see Dr. Trippe to see what kind of treatment her wants to do on me. So, good night all, I started this earlier this morning but just didn't have enough energy to finish it so here it is and I pray you all have a good night's sleep and awake in the morning feeling great!
Monday, March 7, 2016
Trials and Tribulations of living with Secondary Hyperthyroidism Disease
Today is just another long day in my journey. I've continued to have the extreme lower back, hip & leg pain but no answers yet. I still am very sure it's the 'bone pain", another symptom of this disease, that continues to plague me daily. It isn't enough that I deal with the continuing chest pain and trouble breathing due to the low phosphorus I have, you guessed it!!!! another symptom of my disease. One ray of sunshine in this otherwise cloudy day, I got a call pretty early this morning from my PCP that I went to see last Thursday, who promised to get me an appointment with Dr. Bruce Trippe, and Endocrinologist in Montgomery, telling me that they did talk with Dr. Trippe's office and they are supposed to be calling me soon with an appointment to go to Montgomery and consult with him and hopefully he will know all about SHPT and how to treat it. At least I'm holding on to that hope for now. I will take anything right now. I saw my home health nurse this morning for a dressing change on my Groshong port and for her to draw my weekly blood and she is supposed to let me know how my phosphorus is this week because this past week it went way down again in spite of receiving 40 mg. in each bag of TPN I am getting each day. I believe if that was going to do any good I would already begin to see a big jump up in the phosphorus levels instead of it going back down. The phosphorus is very important because it is the thing that is causing so many of my problems right now, weakness, chronic fatigue, chest pain, trouble breathing, heart palpitations and just a general feeling of udder depression that I might never get any better. I want the medical world that control all this to do something about it now, don't make me wait and wait for yet another appointment with somebody that possibly can do something to help me. This disease is hard to live with because nobody understands it, even when you try to explain it to them, and if they see me doing things, which I am very rarely doing anything because I don't have the strength or energy to do anything, they think I must be okay. I'm not but I have a 17 year old foster daughter who really needs me right now so I push myself as much as my body will allow me to to get up out of bed sometimes and make an effort to do something with her. My husband, her uncle, has to do almost everything with her because I'm just not able. While I'm whining I will just throw this in. I bought VIP tickets for Rachel's birthday present to go and see Jeff Bates in concert March 12 in Brewton, Al. and when I bought the tickets I honestly believed and hoped I would be better. Well, I'm not and now I'm so worried about this concert. It's this Saturday and I lay here and wonder if I can actually hold out long enough to do this. My heart says yes, my head says no, lol. I learned one thing, I cannot will myself to do anything anymore. I used to be able to do it before I got this bad, the phosphorus problems, then my hips and legs are hurting me so much each step is so painful. I have to just creep along with my rollater walker but that is so cumbersome to take around. Taking it out of the trunk and getting it opened up is a chore. Rachel can do it but still I just hate that I have to go that way. I used to be a ball of energy, a barrel of fun, always the life of the party until this disease started controlling my life. I am praying about this because I do know that prayer and God are the only answers for me. I know the doctors can treat me when I find the right one but I also know Jesus is the great physician and He's been with me through all this from the beginning so I know he hasn't forgotten me. My faith isn't strong sometimes, I falter and then I'm ashamed of it. I guess there are other things out there that are much more important but right now, being with Rachel, being the mother to her that she needs me to be, have fun with her like we used to do when I wasn't so sick is just the most important thing in the world to me. I'm hoping tomorrow I will get that call to go see Dr. Trippe to see what kind of treatment her wants to do on me. So, good night all, I started this earlier this morning but just didn't have enough energy to finish it so here it is and I pray you all have a good night's sleep and awake in the morning feeling great!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment