Test, test & more test when you have Secondary Hyperparathyroid disease

Today has been a long day for me but I'm  finally home and in bed again, where I spend most of my life. I had to go to Enterprise, Al, where my PCP is and about 25 miles from where I live, to the hospital to have an MRI on my pituitary gland and an ultrasound on my parathyroid glands. Since I've been in so much pain in my hips and legs I had to use my rollater walker because I just can't walk very far without it, especially if I'm having to carry around that heavy TPN bag and I had to take it because we got it hooked up too late yesterday to get it done before we left so it had to go. The MRI was absolutely horrible because having to lie so still for so long on your back  with  hip and leg pain is almost unbearable. I made it through but I wasn't sure if I would or not. I was just hurting so bad. I prayed the whole time I was in that tube that God would help me get through it and to stop the pain so I could endure it. Of course I won't know anything about it until  we go back to the doctor next week. I'm not going to the PCP though and he's the one who ordered it but I suppose the Endocrinologist that I'm going to will get the results too. I am just so ready for next Wednesday to get to the Endo doctor. I have such high hopes this time that I have finally found the right doctor with the answers and knows how to treat my disease or at least can send me where I can. Sometimes I honestly just want to die and get it over with. Each day is just so hard for me, the pain just never ends, even with pain medication I don't get much relief. I hope that my blogging about all this will help somebody out there that is searching for answers, that's all I want out of all this blogging is to help. I want to be honest, tell it like it is, show it like it is so that others can see the real journey we take as someone with a little known disease, Hyperparathyroid disease. Saturday is going to be the biggest trail I've gone through in a long, long time though. I had bought VIP tickets for my foster daughter to go see Jeff Bates in concert this Saturday. I bought the tickets a while back just praying I would be better by the time the concert came around but unfortunately it's gotten much worse due to the intense, burning pain that started in my hips and legs a week ago. I WILL do this, not sure how but I will. She's been through so much in her life before e took her in and I've been sick the whole time we've had her but I've pushed through and done a few things with her but this time is different. When your hips and legs hurt this bad it is so hard to walk, even with a walker.  I walk like a snail, one little step at a time trying to keep from putting too much pain in the hips. I have determined I will do this though and I will. Not only the pain but the extreme fatigue. I just get go worn out and so weak I can't stay up very long at a time but I have to manage this. At least I will have to be up six hours minimum, maybe longer. We have to drive about 40 miles to the concert and then home afterwards. If I wasn't crazy enough for doing that, I also rented a friends vacation home she has in Pigeon Forge, Tn. a  while back to take my foster daughter up there for her spring break. Another niece is flying in to join us but we have to drive. It's about a 7 hour drive for us. I barely can ride, must less drive. I also shall do that somehow, someway. There again, I rented it in hopes of being a lot better by then. We will be leaving on March 30 after two doctors appointment the two days before and coming back April 2. We did this last year and I was sick but not nearly this sick. I already told her I was not going to be able to get out and do anything much with her but she's okay with that. Her aunt, my other niece that's coming is much younger and in much better health than I am so she's going to do the running around. I'm going to just sit on my friends front porch in the swing and listen to the screams from Dollywood (did that last year) and just enjoy the mountains around me. I love the Smoky Mountains so much that I have yearned to go up there just to be calm and relax. Now if I can just get up there!!!!! More on these issues later. Thank you for reading my blogs and please pray of me.