Tuesday, March 29, 2016
Finally got help for my UTI with Ecoli in it, it's a shame you have to wait so long for help!!!! Just another "thing" with my Secondary Hyperparathyroidism
Let me tell you all, I have been in the worst pain of my life I believe for the last few weeks in my pelvic area. I had assumed it might be kidney stones because I've never had them and I knew that you have severe pain in your lower back but I also know that the ones that I've known that have kidney stones, once they finally pass them the pain is gone. My pain was never gone. I went to ER in Enterprise last Friday because the pain got so bad all I could do was moan and cry. My PCP wasn't in the office, the whole office was closed in fact and my home health nurse, Melissa, told me I should go to the ER. I knew it would be a big headache and it was! I did get some pain medication though in my port and got about 12 hours of relief from the agonizing pain but it came back of course and I was once again moaning and crying and rolling around in the bed begging for help. I had an appointment to see my PCP Monday morning at 9:15, happened to have it already so didn't have to fight to get in this time. I told him the antibiotics his nurse practitioner called in for me on Friday didn't work because I CANNOT take antibiotic pills. They make me deathly sick and I throw up and have diarrhea, which is exactly what happened. So he called me in IV antibiotics that I take through my port, which is what I needed all the time, plus he increased my pain medication and wrote it so I can take it every four hours and that has helped so much. I knew that once I got the antibiotic going into me through the port that it would start clearing up the UTI quickly and the pain would began to be more manageable so thankfully all that has fallen into place. I had already realized that I was getting my strength back from my hyperparathyroidism from the new drugs that my new Gastroenterologist. Dr. Vic, gave me plus changing my TPN so I knew that if I could just get some help for the UTI I would began to see the light at the end of the tunnel and I DO!!!! My phosphorus level went up to 2.9 this week. It started out at .9 weeks ago and just wasn't going up very fast at all until the changes in my regimen that the new doctor gave me. Normal phosphorus levels are around 3-4. Mine was 4.3 right before I started getting the iron infusions and then it dropped drastically to .9. That causes extreme weakness, shortness of breath, pain in the chest and all over the body. So, yes, I'm extremely happy that my phosphorus is finally coming back up to normal. I never knew how vital certain things were in your body until all this jumped on me with the hyperparathyroid disease, which I had for a long time but it finally had just gotten to a point that it had caught up with me and I got just drastically sick. So today is a good day for me even though I'm now juggling three things going into my port, I will gladly it since I know now that it is finally going to make me well. WELL, I love the sound of that word! This has been a long, hard journey for me finding out what is wrong with me and how to fix it. I know there are other diseases out there that are just as horrible & I totally understand the frustration people go through going from doctor to doctor trying to find answers to only be told by each new doctor that they can't find anything wrong with you and they pretty much make you feel like it's all in your head or you are making it up just to get sympathy or something. Believe me, I don't want sympathy, I want to be well again and function like I used to. I do know one thing, I will NEVER take my health for granted again. I will enjoy each day to it's fullest, I will never take the ability to just get up out of bed, dress and just go to a store for granted again. Each step I take without a cane or a rollater will be something I never take for granted again. So, all that being said I want to tell you all that I had planned a trip to Pigeon Forge, Tennessee, to the Smoky Mountains, my favorite vacation spot ever, for this week because it's Rachel's spring break and we went last year so I wanted to go again this year but I had been so worried, I mean in a panic because I was only getting worse, not better as the time got closer and closer. I have a friend who owns a home up there, a second home, that she rents out sometimes and I had rented her house in good faith that I would be able to make the trip. My niece from Texas will be joining up because her daughter & son live very close to Pigeon Forge and it is just going to be a big family get together and I was so worried I would not make it but I am!!!!! I'm not as strong as I would like to be, but I am much stronger than I was even a week ago. I was afraid the UTI would keep me in so much pain I just couldn't do the trip but I just could no disappoint my foster daughter, Rachel. She has been planning this trip for a month and is so excited. I am too!!!!! I am packed, ready to go now! I won't be able to do all I would like to do but I will be able to do a lot that I didn't think I would be able to do. I had just hoped to get up there, make it to the bedroom in my friends house and just lay in that bed sick as I've been here but God answers prayers for sure. He answered one for me just this week. So Rachel and I will load up all my necessary medical equipment and as early as we can get up and get going in the morning we will be heading to Pigeon Forge and the Great Smoky Mountains, paradise on earth!!!! Thank you Jesus for answered prayer!!!!
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It is wonderful news that your are improving quickly it seems now that you know what is wrong. UTI's can be such a horrible infection. Have a special blessed time with Rachael and the rest of the family that are gong to PG.
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