Can it get any worse???? I'm just getting sicker and weaker since seeing the Endocrinologist Monday. No cure for Hyperparathyroidism I guess, not Secondary anyway!!

Well, just when you think it can't get worse, it does. My lower back pain has gotten so bad I can't sleep, can't lay down and I'm pretty sure I must have kidney stones since I'm battling my third or fourth UTI again. I cried almost all night and rolled around on the bed. I started the Phosphorus pills Dr. Trippe gave me and guess what, they gave me diarrhea and I have been throwing up again. I lost six pounds in two days and that's being on the TPN still.  If my PCP doctor would just get with the Nutritionist I saw Monday and let her explain that my TPN needs to be adjusted and why then I could be getting the things my body needs and it would be helping me but I can't reach my PCP, it's almost impossible to even leave a message & if you do a nurse gets it and She decides whether I need to see the doctor or if I can just wait until the 28th when I have an appointment scheduled. I am not sure he would even get the message. I would have gone to the local ER here last night I was so desperate for some pain relief but if I go to ER then I have to go into my three year long illness and all that's going on and I'm just so sick I don't think I can do that at this point. I have some pain pills but only a certain amount so I can only take them every six hours and I couldn't take one until 5:00 a.m. this morning when I finally did take one and at least got a little relief but it won't last. I only slept about three, maybe, hours last night due to the pain in my lower back and constant trips to the bathroom because of my stomach issues. I hadn't thrown up since I have been on TPN but I did yesterday. I was told to eat peanut butter to try to get some protein in me, I did eat some on a piece of toast, threw it up for hours. It hurt my stomach so much it wasn't worth it. I have to figure out some way to get some protein in my body or I will die soon. I'm lactose intolerant due to the gastric bypass so nothing with any milk products will stay in me. My husband ordered some Isopure powder online because the Nutritionist recommended that since I could mix it with soy milk or water but it will take a few days to get here. He is gone to Wal-Mart right now to try to find me some kind of protein I can keep down. I have tried so many protein drinks in the last three years, none of them work for me. Usually they are so sweet even if they say sugar free, the sweetness makes me deathly sick to my stomach, another by-product of gastric bypass and now the hyperparathyroidism. I have decided that I am going to send an email to The Norman Clinic in Tampa, Florida, like I wanted to do in the first place and ask them what they advise me to do. If they say they can treat it without killing me with phosphorus pills and things that are making me worse. I'm really in a bad situation right now. I just honestly don't know what to do. When you do go see a doctor, it is eight weeks before you even go back and meanwhile you are getting sicker and sicker. I know I'm dehydrated again due to throwing up and diarrhea. I've got to figure out how to keep something down that has any protein or substance in it. I am still taking the liquid vitamin D3 the doctor gave me Monday but again, the nutritionist told me I wasn't getting enough B complex vitamins and my calories needed to be coming from fat, which is why she wants the TPN changed. So, now you know how my week has gone. I have barely been out of the bed except to go to Wal-Mart (a NIGHTMARE!) to buy Rachel a plain white shirt for color guard tryouts because she failed to tell me or Hamp she needed one until the day of the tryouts. I got a riding cart but still you have to walk to your car because there is nowhere to leave the carts unless you have someone with you to take it back. I got the shirt, took that and flowers to the school for her before tryouts and the came home for a couple of hours and went back to tryouts that lasted a couple of hours. I had to leave, I couldn't stay I was in so much pain in my lower back. That's my life these days.