Well, I know how I'm doing actually, I'm way, way better than when he saw me a month ago. He's going to be very happy to see me I'm sure when he see's how much better I look and feel. I cannot tell you all how much this doctor has done for me. I am also going to ask him if he has any idea of any doctors network or anything like that of doctor's that are trained to recognize and treat Secondary Hyperparathyroidism. I have several people that have followed my blog and have decided that they also have Secondary Hyperparathyroidism because they also had gastric bypass in the past and have been sick now for a long time and I would like to be able to recommend a doctor to some of you in an area near you so you can get diagnosed and treated.; I understand the frustration that goes with being so sick for so long and not being able to find anybody that knows what is wrong with you. It is pretty easy to tell you that you have it if you go get a PTH test run and it's way high and your calcium is borderline low or low. That's a sure sign of Secondary Hyperparathyroidism but I'm no doctor or nurse but I am a patient that has gone through more than one person should have to go through to find help. Honestly I can tell you that out of the 8-10 specialist I have seen in the last year and a half, not one of them was ever truly concerned about me. They would run their test, never one for the PTH level though! and then tell me they couldn't find anything wrong with me. That's when the feeling started that they were insinuating it was all in your head! I can't tell you at the times I have left doctors offices in tears, just deciding not to go to another doctor because it was useless. The last one, the one who told me to "just go home and die" was the last straw for me. He was upset that I wouldn't agree to actually move from my home in Alabama to where he was located in Pensacola, Fl. so that I could get TPN feeding. I told him we just could not do that and that's when he told me I should just go on home and die because that was what I wanted to do if I wasn't willing to move down there! I came home and asked my PC doctor about it, could I get TPN here and he told me of course I could and he ordered it. It turns out that I wasn't getting what I really needed in the feeding but that was because he ordered what a normal person would need and I wasn't "ordinary" because I have hyperparathyroidism but I can't fault him, at least he did something to keep me fed and kept me from dying of malnutrition, where I was headed. Then when I found Dr. Senadhi, he asked if her could take over my TPN feeding because it wasn't what I actually needed and of course I told him I was sure my PC doctor would not be offended at all to turn over my treatment to Dr. Senadhi. And as you all know,
I FINALLY had found
THE doctor that understood what I have and how to treat it and as you all know who have followed my journey that I am improving every day and getting stronger and stronger and beginning to live life again instead of existing and living in my bed 24/7. I hope that this blog somehow helps some people find hope and treatment because I know how it feels to feel hopeless and feel like life is over for you even if you don't die, you are unable to live a normal life because you are too weak and sick to even get out of bed. I will continue to blog as my journey continues though because it's not a journey that is over just yet, it may not ever be over, I'm not sure, but I will continue to blog and tell you all exactly the truth always, even if it's not what I want to say, in case this thing never goes away for instance or I relapse or whatever. You have to know the truth if you are struggling with this horrible disease!!!
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