Tuesday, April 19, 2016

A list of symptoms of Hyperparathyroidism whether it's Secondary or Primary. This is a continuation of my post last night.

Here is a list of symptoms that you can have from Hyperparathyroidism. You can have a few of them or even, as in my case, a lot of them. I honestly have them all  because I had gotten so sick from this before finally finding out what I had. I continue doing this because of those of you who have contacted me and told me you think you know now what is wrong with you and I am doing my dead  level best to help those who have needed this information for a long time but had no idea where to even start to find it. My husband is a bloodhound online. He was just not going to sit back and allow me to die if there was help so he started searching and looking at anything that had symptoms like I have. His first big break was when my  phosphorus went so low I almost died instantly from it and I had been receiving iron infusions for anemia that  I suffer all the time; from the gastric bypass of course. That led him to the article on  The Norman Parathyroid Clinic in Tampa Florida's website. I can't say enough good about The Norman Clinic's link to Parathyroid disease. Even though they deal mainly with Primary Hyperparathyroidism because with that you have adenoma's on your parathyroid glands that require surgery to cure your problem, they also do have a good bit of information on Secondary Hyperparathyroidism, caused from gastric bypass and a few other diseases that cause you to have malabsorption/malnutrition, which in turn causes your parathyroid to over produce calcium which in turn goes into your bones, kidney's and causes you to slowly die. I spent three years extremely sick from this, nearly dying several times, just in the last four months I stood staring death right in the face when my phosphorus dropped to .9. The normal phosphorus should be in the 3-4 range. Mine was 4.3 when I started taking iron infusions for anemia and I had a reaction to the iron, which caused the phosphorus to drop drastically, which caused chest pains, trouble breathing, even more fatigue if possibly and I just knew I was going to lay in my bed and die before any doctor finally figured out what is wrong with me. I can NEVER thank God enough for finally, in a round about way because of being sent to an Endocrinologist (who should have been the one to treat it but said he wasn't able to treat it) and since that Endocrinologist was useless (I will do him a favor by not posting his name on here!) he did refer me to a Gastroenterologist who FINALLY was THE one to diagnose me without a test of any kind and tell me he knew what I have and  how to fix it. Those were the best words I had heard in over three years. His name is Dr. Viplove Senadhi, and he is in the old Goode building at Jackson Hospital in Montgomery, Alababma, Suite 801. I can supply his phone number if anyone on here needs it. He immediately started me on a treatment of Calsitrol, three times a week, through my port, added Vitamin B complex and Vitamin D3 to my TPN. Very simple, huh? I have made tremendous strides in less than a month. I can get up now and do many things I have not been able to do in years, alone! So here is the list of symptoms for you to read and decide if you need to find out if you do indeed have hyperparathyroidism either Primary or Secondary. At the bottom of this list there is a discussion about surgery to remove the adnemo's from your parathyroid glands but remember that is ONLY in Primary Hyperparathyroidism, not in Secondary Hyperparathyroidism because we don't have any adnemo's with it. The symptoms are the same though, just to clear this up before you read the list. Hope this helps!

Symptoms of Parathyroid Disease (Hyperparathyroidism)

  • Loss of energy. Don't feel like doing much. Tired all the time. Chronic fatigue. (#1 symptom)
  • Just don't feel well; don't quite feel normal. Hard to explain but just feel kind of bad.
  • Feel old. Don't have the interest in things that you used to.
  • Can't concentrate, or can't keep your concentration like in the past.
  • Depression. (blog)
  • Osteoporosis and Osteopenia.
  • Bones hurt; typically it's bones in the legs and arms but can be most bones.
  • Don't sleep like you used to. Wake up in middle of night. Trouble getting to sleep.
  • Tired during the day and frequently feel like you want a nap (but naps don't help).
  • Spouse claims you are more irritable and harder to get along with (cranky, bitchy). (blog)
  • Forget simple things that you used to remember very easily (worsening memory).
  • Gastric acid reflux; heartburn; GERD. (blog)
  • Decrease in sex drive. (blog)
  • Thinning hair (predominately in middle aged females on the front part of the scalp).
  • Kidney Stones (and eventually kidney failure). (blog)
  • High Blood Pressure (sometimes mild, sometimes quite severe; up and down a lot).
  • Recurrent Headaches (usually patients under the age of 40).
  • Heart Palpitations (arrhythmias). Typically atrial arrhythmias. (blog)
  • Atrial Fibrillation (rapid heart rate, often requiring blood thinners and pacemakers). (blog)
  • High liver function tests (liver blood tests).
  • Development of MGUS and abnormal blood protein levels.
Most people with hyperparathyroidism will have 5 - 6 of these symptoms. Some will have lots of them. A few people will say they don't have any... but after an operation they will often say otherwise. 95% of people with hyperparathyroidism will have 4 or more of these symptoms. In general, the longer you have hyperparathyroidism, the more symptoms you will develop.

1 comment:

  1. I believe this is what's wrong with me. I had gastric bypass in 2008. I have all these symptoms. I have had everything tested but my phosphorus. Will be asking for that. My numbers fall within the range. I am forwarding your blog link to my Dr. today. BTW, how are you doing today? I noticed this was almost a year ago.

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