I am going to post this information from the Norman Clinic because it very shortly explains to people how just a very minimum low calcium level can effect your body and the calcium level is controlled by the parathyroid glands. Look at this information, look at the graph they have and see the levels of calcium and what it can do to your body. I just want to get this information out there to everybody possible because it almost killed me. It doesn't kill you quickly but it will kill you and it will make you wish you were dead a lot of the time because of the horrible symptoms that you have when you have this disease and it goes undiagnosed for years. The longer it goes on the worse your symptoms become. Life becomes a living hell for you. You go from doctor to doctor, too sick to even go to them usually, just hoping to find one that can find out what is wrong with you only to be told over and over that they just can't find anything wrong with you. If you are going through that or know somebody who is please, please show them this information and encourage them to go get a PTH test done. Any doctor can do a PTH, your PC doctor can do it. If it's high and your calcium is low you are in trouble. You then have to find a doctor who knows how to treat it. That should be simple but it's not! If you read on the Norman Parathyroid Clinic's website even they will tell you that many, many Endocrinologist, doctor's who should recognize it right away and treat it don't even think about it or tell you they know what to do. I know that because I went to one who ask me why I was there. I told him my PC doctor did a PTH test on me because of my husband's research online that finally suggested that I had SHPT and that Endocrinologist looked at me and said "No that's not what I treat". I was just shocked! I thought, great, where do I go now! Thankfully he did do the one thing for me that has changed my life. He referred me to Dr. Viplove Senadhi, a Gastroenterologist who just happened to train at Johns Hopkins in the field of helping people who had gastric bypass find out that they now have Secondary Hyperparathyroid Disease. He said he understood everything I had gone through for three to four years and he knew how to fix it and it was an easy fix!!!!!! Those words were magic to me!! I couldn't believe it, after all these years I finally, finally walk into a doctors office that didn't immediately tell me I had to have tons of test, tons of blood work etc. and then maybe they would know what my problem was. He didn't order the first test. He looked at my PTH test I had from my PC doctor, my calcium level and knew immediately what was wrong with me. He immediate began treatment the next day and each day I have continued to improve, grow stronger and get my life back!!!!
YES you heard me correctly, I said "GET MY LIFE BACK" . Those are words I know many would love to hear also so please feel free to share this information, share my blog, have them contact me personally, anything, just help me get the world out about this terrible disease that is called the silent killer because it slowly kills you but your family never knows why you died. So here is the information I told you about and hope this helps somebody today!
Even "mild" calcium elevations can make you miserable! We reviewed data from over 20,000 patients with parathyroid disease treated at our center, and found that the calcium level did not predict the severity of parathyroid disease. That is, people with calcium levels that were just above normal had as many symptoms and complications from the disease as those with very high calcium levels. Last week I presented these findings at a national medical society meeting. In the graph below, I compare patients with moderate to very high calcium levels (Calcium > 11) to those with only mild calcium elevations (Calcium < 11). The two groups are exactly the same in rates of fatigue, osteoporosis, kidney stones, etc. Doctors have long been taught that mildly high calcium is not that bad, and doesn't need to be treated. We need to change that thinking. Help us educate! - Dr Deva Boone
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