Good report at the Hematologist today!!!! Life with hyperparathyroidism is never easy but I'm taking it one day at a time.

Well, I feel vindicated after today!!!! Way back when I began iron infusions for my anemia (which at the time I had no idea I had hyperparathyroid disease, I only knew I was anemic from my malnutrition/malabsorption problems) I was told that after the four infusions I would feel like a new woman. Well, I did, but not a good kind of new woman, like a new woman who felt like she was about to die! After the first infusion was when my phosphorus began to drop. Each week it got lower and lower. I called the Hematologist and talked to a nurse and told her I knew my phosphorus level was dropping from the iron infusions but she assured me that couldn't happen. I knew it could, I read about it and online and knew that was the problem but she never told the doctor I had called so today I went in to see her loaded with all my evidence! My husband had kept a calendar of every doctor, every procedure, everything I had done for months trying to find out what was wrong with me and he was the one who discovered I had hyperparathyroid disease! He kept looking until he found the answers. When I showed all that to Dr. Misischia, she was shocked and told me we were exactly correct, the iron did cause the phosphorus to drop. I had indeed had an allergic reaction to the iron because of my hyperparathyroidism. I told her I had called her office and talked to a nurse who assured me that the iron could not have caused it.  Of course to be honest at that point nobody knew that I did indeed have hyperparathyroidism but still, that wasn't the issue at that point either, the point was I was getting sicker and sicker from iron infusions that were supposed to make me feel fantastic! She was so apologetic and took lots of notes and got my new Gastro doctors information and such because she said she learned something herself today and she wanted to communicate with Dr. Sanadhi about it and find out more so she would be better aware and train her staff better to know things like that. She said she was going to have a meeting with all her nurses and tell them what happened and that if any patient ever called and told them something like that about getting sicker and sicker every time they had an infusion of iron that they were to come to her from now on and consult with her. So today I felt vindicated  yet again!!!! Just like when I finally found out what was wrong with me a few weeks ago after being told there was nothing wrong with me over and over. So I want you all to know that if you have something like this happen, especially  if you believe you have hyperparathyroidism please, don't stop, keep pushing for answers. Sometimes you just plain have to become unpopular with some doctors staff because they refuse to let you talk to them or even consult with the doctor when you tell them something like this. I hope that this blog is helping some of you know how to get faster and better help for problems like this. It's a hard disease to diagnosis a hard disease to even make people understand, most don't and won't ever  but just know this. The key is getting the awareness out there to as many people as you can that you know that's had gastric bypass in particular that if they have these symptoms like mine, suspect hyperparathyroidism, go to a doctor and ask for a PTH test. If it comes back high, run, don't walk to another doctor if they tell you it's high but that's okay, we'll just watch it. It's not okay!!!!! Find a doctor who understands it's not okay to have a high PTH if you've ever had gastric bypass!!! I wish I had a way to help connect people with doctors that do care and understand it but so far I haven't gotten that one figured out but I am still looking for a way to do it. Thanks for reading my blogs and please forward this information  to anybody you know who might benefit from it! Thanks!